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| My name is Traci and I have had SBS since August 2000. I
live in Wisconsin and not one health care facility was capable of treating
a patient with SBS and the medical staff at the hospital where I stayed
was able to help from the NRC.
All my problems started from a partial hysteremy in 1993 follow by a
bowel obstruction week later. Things were fine until January of 1999, I
had a mass on my ovary and had surgery to remove that. They did see a lot
of adhesions and hoped by inserting a NG tube that the adhesions won't
complicate my health. One week later, I had to undergo 5 resection of my
small intestine and 9 hours long. I don't know the length they had to
removed. I spent 6 weeks in the hospital on TPN and NG and continued with
NG at home. I was still having trouble with vomiting and pain and I was
assured by the surgeon it will go away after 1 year. One and one half year
later, I sought a second opinion surgeon and I was partial obstructed and
had surgery on 8/30/00. I assured myself it was going to be simple surgery
and I would be out of the hospital within a week. I was wrong. After
almost 11 hours of surgery, the surgeon told my family I may not survive
and the next 5 days would critical. I battled fevers, infections and fluid
on the lungs. After 6 days, I was out of the ICU and spent the next 4
weeks recovering. After I was released from the ICU, the surgeon finally
told me of my surgery and the prognosis. I may never be able to eat again.
I may have to live on TPN and tube feeding for a very long time. In
another word, my life has changed and I was only 38 years old. Having my
best pal which is a 4 year old black lab dog at home is a very good
therapy for me, both mentally and physically and emotionally. By walking,
adjusting to the diet, and taking my medication, I was able to get off of
TPN and tube feeding after 5 months. After 2 1/2 years, I'm still making
progress and have come along ways. It wasn't easy to live with SBS but I
survived. |

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