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Garrett
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Hi every one, My name is Garrett and I have SBS. I'm now 9 years old and a very strong and healthy boy.  Where to being.  My bowels where not on the outside when I was born, when they cut me open my small bowel was all dried up and dead. 
The Dr. could only save 12 inches of my small bowel. They told my Mom I only had a 25% chance to live.  It is very rare for child to live past two with such a short bowel.  I have been through it all. At 11 months old I was on life support due to a central line infection  Which was  at least my 10th line infection. I have had at least 10 surgery's. 
My liver was failing due to TPN. And I was on the Transplant list.  My Mom did one thing that the Dr's did not want to do.  We never feed me by my G- tube.  We use it for meds only.  We always feed me by my mouth.  My Mom said my mouth and liver needs to work at all times.
Well I never need the transplant because I started to turn around.  I started to gain weight on my own.  I was holding all my fluids.  My bowel movements went way down.  My Mom started to feed me every thing that was high in fat. McDonalds F/F were great.  I'm  still on a 5000cal a day diet. Which is O.K. with me I love to eat.  I do not eat any sugar or  dairy because that makes me go a lot.
At the age of 2. I was off of all TPN. They pulled my G-tube, and Thank God I did not need the transplant.. They talked about trying to gut my bowel to make it longer but my good friend Dr. Julie said there was to many risks. 
My Mom said if any other Moms or Dads who need someone to talk to, you can E-mail us at .  Trust me we have been through it all and I am here to tell you we can survive. I'm living proof. 
Trust in God and find out all the information you can on SBS