My daughter, Chelsea, was born at 26 weeks and weighed 1 pound, and was 11

3/4" long.  She had NEC and had surgery at 1 month old.  They removed her

large intestine and she currently has 30% of her small.  She has had numerous

surgeries, to many to count.  The last one was when she was 3 1/2.  She had

obstructed bowel.  They were going to do a procedure called the Bianca

(spelling??) where they divide the intestines in half and then connect them

to make them longer.  They said that was not necessary.  She has had numerous

hospital, approx 50, stays since that time for dehydration, central line

infections, g-tube problems.  She will be eight in July, and currently weighs

30 lbs and is 42" tall.  The doctors are now exploring the growth hormone

route to see if it will help her get on the growth chart.  She is a very

happy go lucky child, very smart, and has no problems with controlling her

bowel.  She just has to go a lot.  She now has no button and takes all food

by mouth.  She drinks Peptamen Jr every day and I let her eat what ever she

wants.  She will catch up on her own time.  I'm just glad she is here.  So

what if she can wear some 6-12 months clothes.  She just stay smaller longer.

 She will catch up.