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BABY BRIAN

We had so many e-mail's on Baby Brian, and everyone was asking about him.
So we decided to put this up, and as soon as we find out more we will post it.
Please keep this family in your prayers. 

 On march 5th Jeanette and Brian Had a healthy baby boy 5.6oz. on march 9th he was diagnosed with {NEC} Necrotizing Enterocolitis that night he was taken in for surgery when they came out they said he didn't have a chance it looked as if the infection had already taken over all of his intestines
It looked as if all his intestines were dead they started treatment 3 antibiotics ventilator IV's and much more.. on the 13th I was given a call by baby Brian's doctor telling me we need to come in to talk about what we were going to do with my son so we went  to the hospital and we were given 3 choices first being take him off every thing and let him go.
second was go back to surgery for a second look if any bowel had survived take out the dead but after the first surgery they really didn't think any bowel had recovered 
third was go in for a second look and if all dead leave everything as is and let him go we chose the second not even a half  hour had went by well he was in surgery and the Doc came out amazed my son has all of his lg intestines and 28cm of small and now he is still fighting.
on march 16th the surgeon went in and put two drains in his abdomen one on each side to drain the fluid in the open space and to drain any bad fluid still in his abdomen  Yesterday it really hit me what all is going on my son has such a fight ahead  because now if he makes it past NEC and there's a lot more to his fight with NEC 
he has what is called short-bowel syndrome and that a battle all on it's own, we also have to worry about infection and kidney failure and so much more I need help, I need to know how when and what's the first thing I need to do to get my son on the  waiting list for liver and small bowel  transplant. 
I need to talk with others who know more about this are know someone who has been through this  Please keep my son and my family in your prayers 

UPDATE FOR BRIAN.  09/30/02

Hi Jim it's me Jeanette Brian's mom, sorry I haven't wrote we've had a lot of changes we have moved. Well Brian is doing fantastic so far he still is home we've been in and out of the hospital a few times but he still is amazing every one. Most doctors are saying there is no way Brian is going to need the transplant and that's what we are all praying for, that he don't need the transplant I want to thank everyone and let them know how much prayer works

love always Brian JR. and family