Who We Are:
Hi and welcome to The No Guts Country Club. My name is Jim,
I live in Fort Myers, Fl, just so you will know I am a real person. Every thing I say is from
my experience in about the last fifteen years with Short Bowel Syndrome, in fact I
have what is called Extreme Short Bowel Syndrome. I have "about" 12 inches
of active small intestine and "about" 10 inches of small intestine that was
really not useable to ingest vitamins, but was viable enough to use as a conduit and
reconnect. This give the Doctors enough that I could be re-connected and
not have an ostomy. I have about 22" total out of a possible 22 FT or so
that is normal
My small Intestine is made up of short pieces, mainly some of the "loops",
sewn together, and according to the Doctors the longest single piece of
intestine is "almost" 6" long. I have found that if I stretch while
reaching to a top shelf, or have a "jar" by hitting a "chug hole" in the
road, or even the shaking of a ridding lawnmower, it stretches the
intestine enough that I have terrific pain. I don't dare go on a ride in
an amusement park.
I cannot, nor do I want to give the impression that I am giving out
medical advice (please read my disclaimer). I believe there is no one,
(except The Lord) that is better than a good Doctor that you can talk to,
and one that will listen and give you better answers. Keep in mind a good
Doctor will tell you if he or she does not know the answer to your
question. Please do not ask me to diagnose your particular problem.
Everyone reacts differently, and I will not make a guess when it affects
someone's life.
If you are here for the first time, Welcome, and we ask you to please
check out the rest of the site. It has some information that I think will
interest you.
Our Purpose In Life:
I have heard it said that God has something in this life
for everyone to do. Maybe this is my work in life. I will have to admit
that I would have preferred something to do that did not have as much pain
attached to it. But, The No Guts Country Club is a place that
everyone with Short Bowel Syndrome can call home.
With the help of the Lord, I will provide information, or the way to find
information, on Short Bowel Syndrome. SBS is a name for a condition that
is caused when 1/2 or more of the small intestine is removed. It is not a
disease or a problem by itself, but is the source of other problems that
develop. It is a condition that exists with the loss of most of the
intestine. There is no way to cure SBS other than with a transplant, which
has a set of problems of it's own, but
it can be treated. Our aim is to provide as much information as possible
on to ways to treat and cope with SBS, and the many problems that are
associated with, and caused by the loss of the intestine.
I have tried to provide something for everyone with SBS irregardless of
the cause. There is also information for friends and family. Some of the
information listed in these pages are the work of years of searching for
information on my part, and some of it has been provided by others with
SBS, or by the care givers that work tirelessly to help us that have SBS.
I pray that these pages will provide comfort, encouragement, and direction
to those that find themselves suddenly at, what looks to be, the end of
their world
Why This Site:
I know I am not alone in trying to find someone that I can talk to
about the problems I have everyday. Living in the bathroom, being tired all
the time, and having to eat so much. All of my
blood tests, and my blood pressure have gone haywire, and every place, that
I have a place, hurts, and we found the Doctors were wrong when they said
only 90 days to live.
And then it hit me, I was here, but not with all my original working
parts.
After all these years I am still searching for
information on SBS. Although some research is being done, and when I ask
why not more(?), I get the answer, not enough people live to be able to do
a long term study. I do not say this to scare anybody, I am just telling
what was told to me by some of the Great Doctors that treated SBS, and the
Doctors that do transplants.
This web site is growing.
If you would like to help with the maintenance and expansion of The No
Guts Country Club you can do two things.
First, send me your story to post for other people with SBS to read.
Second, patronize our sponsors. They are the ones that
help keep this web site
going. The NoGuts com is my
caregivers site. For every order Jim receives, 10% is given to someone
with SBS. Check out his site and then place an order and tell your friends
about it
Now, take a tour around the Noguts Country Club.
This site was designed to be best viewed on MS Explorer. If you have
trouble with it displaying, please let me know by using the
Feedback
Form, telling me what Browser you are using (ie: Netscape
3.0, Opera, ect.) and your operating system. We are doing our best to write it so
everyone can view the information.
I want to be a kid
again
